Our week started out pretty gloomy but has ended on a high note! We've still got a long and winding road ahead of us. Insurance is not easy to deal with by no means. Continuous doctor appointments and therapy sessions are going to get old. The stretches are uncomfortable for James to endure. He is not going to like having a brace on his leg or to have to get shots on a regular basis. But today was a GOOD day and we must give all the praise and glory to our heavenly Father. His grace is sufficient!!
Even though she said right now he has no delays if he doesn't get the therapy he needs he will in the future, especially at this point in his life. The time between 18 months and two years of age is so crucial because there is so much development in that time period. The neuro also told us this and that is why I have been on pins and needles these last two weeks waiting for therapy to start. I can breath a little easier now! One of the first questions she asked was if I understood that CP has a very broad spectrum. She asked if the neurologist had explained that and I told her no, not really. We both laughed and she said that in her experience with neurologists she has found that sine they are so intelligent they tend to not be able to relate info very well to those of us who are not so "intelligent"! She went on to say she has treated patients with CP as serious as comatose state to being so mild that you aren't able to tell AT ALL that something is wrong. She automatically knew James' was a very mild case. Music to a mother's ears! She also explained how CP affects someone. The part of his brain that is damaged cannot send the message to the muscles that are affected by that part of the brain that they need to work. So, we have to train another part of his brain to get the message out and therapy is the way to do that.The evaluator from our state program, Babies Can't Wait, came to the house today as well. Since he has the diagnosis of CP he is automatically eligible for the program. I fell in l-o-v-e with her too!! Once again I had to answer a million questions and sign tons of papers. She came when they were eating lunch and was just blown away at how well he eats and the fact that he uses a spoon so well. Once he got down, she pulled out her box of toys and started testing his abilities. She was pleased with all the skills he has and told me some more things to start teaching him. She also said he doesn't have any developmental delays. So I asked what she thought about his development in the future, she said that with therapy and me teaching him new things and with Audrey motivating him with all the things she can do, she really believes that he will thrive beyond belief! Again, music to a mother's ears!!! Oh, and his language skills are right on target so he wont need any speech therapy right now! Once they get all his medical records and evals, the BCW team will come up with a "plan" for James as to what route they are going to take with him and we will go from there. She told me that this program is designed for me to get whatever I want for our son. What a blessing!!